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中間性
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中間性性象譜 |
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中間性的原因-
激素因素
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先天性腎上腺增生性肥大(Congenital
Adrenal Hyperplasia, CAH) |
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治療與援助
治
療
一些類型的先天性腎上腺增生性肥大能夠運用諸如羊水診斷或絨毛膜取樣的產前檢查被發現。某些類型甚至在寶寶出生前就能夠醫治。如果在孩子出生時懷疑存在著先天性腎上腺增生性肥大的風險,因為一些新生兒會緊迫地需要作電解質替代療法,所以作早期篩查是明智之舉。為了校正現有的激素失衡,他們以及其他的大多數病人也需要一定程度的激素常規治療。隨著孩子的發育,這種激素療法需要作出調整,並且必須延續到成年。整個療程,從幼年到成年,也需要密切的醫學觀察和指導。一旦這些措施得到了保證,患者就能夠很好地過著正常的生活。以往,孩子出生後的數周或數月內,針對“莫淩兩可”的性器官,往往常規性地施行“矯正”手術。不過,現今的內科醫生已經變得更加謹慎了。他們現在會邀請病童的雙親,並且考慮所有的可能後,儘量為孩子做出女孩的性別選擇。他們因而一起會診,以決定適合在什麼時候施行什麼樣的手術,或者分析是否根本就不需要任何外科手術。這樣慎重處理的結果是:許多外科矯正手術延至孩子年齡相當大的時候,或者經斟酌後乾脆就予以取消。
援助社團 過去,患有先天性腎上腺增生性肥大的患者及其家人常常感到孤立無助,也發現難以獲得更多的有關病症知識。然而,近年來,已經成立了許多援助社團。這些團體會樂意提供額外的知識,它們也在其他相關的網站建立超連結,以提供幫助。例如這些社團(請點擊下麵的圖示):
腎上腺增生性肥大者網站 (Adrenal Hyperplasia Network) |
克萊姆先天性腎上腺增生性肥大英國援助社團
(Climb CAH UK Support Group) |
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Intersexuality - The Intersexual Spectrum |
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Causes of Intersexuality - Hormones
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Congenital Adrenal Hyperplasia (CAH) |
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Treatment and Support Treatment
Some forms of CAH can be detected in prenatal tests like
amniocentesis or
chorionic villus sampling. Some forms can even be treated before the baby is born. If there is a suspicion of CAH at birth, an early screening test is advisable, because some newborns will need immediate salt replacement. They and most others also require some regular hormonal treatment in order to correct the existing imbalance. The therapy needs to be adjusted as the child grows older and must be continued in adulthood. Close medical attention and supervsion are required at all times. Once these are assured, a person with CAH can lead a fairly normal life. In the past, “corrective“ surgery was routinely performed on “ambiguous” sex organs within the first weeks or months after the baby’s birth. However, today physicians have become much more cautious. They now involve both the parents and, if at all possible, the girl. They then decide together what kind of surgery is appropriate at what time, or if any surgery is
not wanted at all. As a result, in many cases surgery is postponed until much later or even considered unnecessary.
Support Groups In the past, persons with CAH and their families often felt isolated and found it difficult to learn more about the condition. However, in recent years, a number of support groups have organized. They will gladly supply additional information as well as links to other related sites. For example these groups (click on logos):
Adrenal Hyperplasia Network |
Climb CAH UK Support Group |
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