中间性 - 中间性性象谱

中间性的原因- 激素因素

5-α-还原酶缺乏(5-ARD)

治疗与援助

治 疗
5-α-还原酶缺乏容易被误诊为某种类型的男性性激素失敏性综合征(参见该综合症)，并且，由于他们外观上的女性身体特征的原因，大多数罹患这种病症的孩子只是被当作女孩子来抚养。但是，青春期向男性性征的这种转变通常会暴露真实的病症。一般说来，在现代西方社会，一直就不大能够容忍女孩在青春期变为男孩并作为男性成人生活。所以，在过去，各种各样常规的外科干预手术全然不顾患者的染色体性别，总是设法通过维持他们的“女性特征”而使这种孩子“标准化”。这种传统的医疗惯例现在正受到各种各样的中间性社团的抨击。如果这个外表为女孩的当事人非常坚定地认可她的女性性角色，则这样的病例倒也另当别论，据此在青春期之前施行适当的外科手术也许是正确的。但是，考虑到所涉及的心理与法律问题的复杂性(往后可能有玩忽职守的法律诉讼)，家长和医生都应该正式地征求和尊重这个孩子的个人意见，并且也要从有关倡导和支持个人权益的社团获得更多的咨询信息。

援助社团
过去，患有5-α-还原酶缺乏的男性及其家人常常感到孤立无助，也发现难以获得更多的有关病症知识。然而，近年来，已经成立了许多援助社团。这些团体会乐意提供额外的知识，它们也在其他相关的网站建立超级链接，以提供帮助。例如以下的社团也援助罹患5-α-还原酶缺乏的患者(请点击下面的图标)。

男性性激素失敏性综合征援助社团(AISSG)

Intersexuality - The Intersexual Spectrum

Causes of Intersexuality - Hormones

5-Alpha-Reductase Deficiency (5-ARD)

Treatment and Support

Treatment
5-ARD is easily misdiagnosed as some form of AIS (see there), and, because of their outwardly female bodies, most of the children affected are simply raised as girls. However, the changes of puberty toward maleness usually reveal the actual condition. Generally speaking, in modern Western societies there has been little tolerance for girls turning into adolescent boys and then living as male adults. In the past, therefore, various early surgical interventions routinely tried to “normalize” the children by keeping them “female” in spite of their chromosomal sex. This traditional practice is now being challenged by various intersex groups. The case is different, if the girl very strongly identifies with her female role. It may then be correct to perform the appropriate surgery before puberty. However, considering the complexity of the psychosocial and legal issues involved (possible later law suits for malpractice), both parents and doctors should solicit and honor the opinion of the child and also obtain additional information from advocacy and support groups.

Support Groups
In the past, persons with 5-ARD and their families often felt isolated and found it difficult to learn more about the condition. However, in recent years, a number of support groups have organized. They will gladly supply additional information as well as links to other related sites. The following group, for example, also supports persons with 5-ARD (click on logo).