|
中間性
-
中間性性象譜 |
|
中間性的原因-
激素因素
|
|
男性性激素失敏性綜合征
(Androgen Insensitivity Syndrome,
AIS) |
|
治療與援助 治
療 甚至在個體的嬰兒期,也有能夠探測男性性激素失敏性綜合征的醫學檢驗方法。但是,男性性激素完全失敏性綜合征通常在兒童期不會引人注意,並因此而罕有在這個時期被確診的。男性性激素部分失敏性綜合征更有可能早期被發現。一旦被確診,這個孩子在上述已經提及的男性性激素失敏性綜合征程度表中的位置會有助於決定是將其作為男孩撫養還是作為女孩來撫養。對於男性性激素完全失敏性綜合征的病例(呈現女性器官)和略微輕度的男性性激素部分失敏性綜合征的病例(呈現男性性器官),這種取捨會比較容易;而對介於這兩者之間的其他病例,要做出性別取捨則相當困難。依據個案不同,並且在對所有的選擇仔細斟酌後,在青春期給予某些激素治療也許是有用的,並且已經證明隨著年歲的增長再來做出性別的取捨會令人滿意,某種額外的外科手術也可有助於把男性或女性身體外貌固定下來。不過,近年來,如果這種外科手術按照常規並施行得過早的話,許多罹患男性性激素部分失敏性綜合征的成年人已經開始對這種治療持批評態度了。(隱睾症的外科移動手術則是另外的一個病理問題,並且在適當的年齡段施行手術可能是必要的。)無論如何,在進行性別取捨時,尋求有關各方的意見和保持與相應的援助社團接觸是明智之舉,這其中需要醫生、家長和患者本人的公共參與。
援助社團 過去,患有男性性激素失敏性綜合征的男性及其家人常常感到孤立無助,也發現難以獲得更多的有關病症知識。然而,近年來,已經成立了許多援助社團。這些團體會樂意提供額外的知識,它們也在其他相關的網站建立超連結,以提供幫助。這樣的團體的例子有(請點擊下麵的圖示):
|
|
|
|
Intersexuality - The Intersexual Spectrum |
|
Causes of Intersexuality - Hormones
|
|
Androgen Insensitivity Syndrome
(AIS) |
|
Treatment and Support Treatment There are medical test that can detect AIS even in babies. However, CAIS is usually not suspected and thus rarely discovered in childhood. PAIS is more likely to be diagnosed early. Once a correct diagnosis has been made, the child’s position on the already mentioned AIS grading scale will help in deciding whether it should be raised as a boy or a girl. In the case of CAIS (female sex organs present) and some mild cases of PAIS (male sex organs present), the decision is easy, in others quite difficult. Depending on the individual case, and after carefully weighing all options, some hormonal treatment may be useful in puberty, and where a sex assignment has proved satisfactory over the years, some additional surgery may also help in consolidating the male or female physical appearance. However, in recent years, many adults with PAIS have become critical of this kind of surgery if it is performed routinely and too early. (The surgical removal of
undescended testicles is another matter and may become necessary at some point.) In any case, it is advisable for all concerned – doctors, parents, individuals with AIS - to seek and maintain contact with the relevant support groups.
Support Groups In the past, persons with Androgene Insensitivity Syndrome (AIS) and their families often felt isolated and found it difficult to learn more about the condition. However, in recent years, a number of support groups have organized. They will gladly supply additional information as well as links to other related sites. For example this group (click on logo):
|