Richard Kramer*The DSM and the Stigmatization of People
|
Reason identified by respondents |
Percent of respondents |
1. Figure out how to live in society with this attraction |
79% |
2. Deal with society's negative response to my attraction |
69% |
3. Improve my self-concept |
60% |
4. Deal with sexual frustration |
55% |
5. Understand the cause of the attraction |
45% |
6. Learn to control the sexual feelings |
29% |
7. Develop or increase an attraction to adults |
24% |
8. Extinguish or reduce the attraction to boys or girls |
23% |
9. Other |
21% |
The professional literature appears to ignore the most pressing needs identified by MAPs, generally addressing only goals 6 and 8. It is virtually impossible for MAPs to find literature suggesting that professionals recognize the difficulties they face in developing positive outlooks, relationships, and self-concepts within a society that reviles their feelings of emotional and sexual attraction or that professionals acknowledge the feelings of hopelessness and suicidal thoughts experienced by MAPs, including young adolescents. The Pessimism about Pedophilia article mentioned only law enforcement approaches and methods to control sexual thoughts and behavior. While small numbers of MAPs may have difficulty with self-control, the majority have different and much broader mental health needs. Professional writing may suggest to the MAP a dismissal of these needs, decreasing significantly the willingness of MAPs to seek mental health services when needed.
Are MAPs actually stigmatized by the DSM and professional writing about pedophilia? More findings from the summer 2011 survey address these questions. The survey asked respondents to read and react to excerpts from three documents: the DSM-IV-TR accompanying text,[4] the literature review supporting the DSM-5 (Blanchard, 2010), and Pessimism about Pedophilia (2010). For comparison purposes, respondents were also asked to react to an excerpt from the non-forensic study conducted by Wilson & Cox (1983).
The vast majority (72-89%) of MAPs responding to the survey questions (79 or 80 people, depending on the question) felt that the DSM-IV-TR accompanying text was inaccurate but reflected the understanding of the typical professional, and that it contributed to a professional view that discouraged them from seeking mental health services (see Table 2). They said it did not encourage professionals to focus on their psychological well-being but instead contributed to adversarial therapist-client relationships and unethical practices by professionals. Responses to the excerpt from Pessimism about Pedophilia were very similar, with 69-72 people responding. Comments showed that several felt the articles were dehumanizing and promoted social control rather than therapeutic goals.
Reactions to the DSM-5 literature review (Blanchard, 2010) were in the same direction (with 69-71 respondents), although not quite as strong. A majority (66%) disagreed with the statement that the author’s recommendations would encourage professionals to focus on the patients’ psychological well-being, and 60% agreed that the recommendations would contribute to adversarial professional-client relationships. Almost half (49%) thought they would encourage unethical treatment (34% were uncertain or neutral), and 60% thought the author accepted the use of phallometry against the patient’s will. A large majority (80%) disagreed with the statement, “The recommendations of this article encourage me to seek help from a mental health professional.” Again, respondents’ comments expressed suspicion of a social control agenda:
• “Isn't the goal of therapy for the person to feel comfortable enough to open up to the therapist about his/her attractions rather than using what amounts to a sexual lie detector?”
• “[The article] dehumanizes the pedophile. The phallometric test in this instance is unethical and morally reprehensible. The study is meant to prove something, not to help anyone …”
• “The article is … buying into the idea that MAPs should be punished as harshly as possible.”
It is instructive to compare these findings with responses to the non-forensic Wilson & Cox excerpt. Survey respondents reacted to this passage in a way that was almost exactly opposite to their reactions to the other three excerpts. Out of 75-78 respondents, the majority (65-74%) felt that the passage was accurate and expressed a desire to understand MAPs, that it encouraged professionals to focus on their psychological well-being, that it did not contribute to adversarial relationships or unethical practices, and that they “would seek help from a professional who believed information like this.” Some respondents said that they could recognize themselves in the description given in the excerpt. One respondent wrote, “A positive feature of the text is the way it seeks to remove the 'them verses us' world view” and another said, “[T]he attitude represented here would be a non-negotiable factor if I ever felt a need for professional help.”
Table 2. Respondents’ Agreement with Statements About
Two Pieces of Professional Writing About Pedophilia
Statement |
DSM-IV-TR Accompanying Text for Pedophilia |
Pessimism about Pedophilia |
||||
|
Agree |
Uncertain/ |
Disagree |
Agree |
Uncertain/ |
Disagree |
Information like this reflects the understanding held by the typical mental health professional. |
74% |
19% |
8% |
67% |
29% |
4% |
Information like this is accurate. |
11% |
17% |
72% |
12% |
12% |
77% |
The writers seem to want to understand people who are attracted to boys or girls. |
9% |
11% |
80% |
10% |
13% |
77% |
Information like this encourages mental health professionals to focus on the psychological well-being of people who are attracted to boys or girls. |
6% |
5% |
89% |
7% |
6% |
87% |
Information like this contributes to an adversarial relationship between the mental health professional and the minor-attracted person. |
85% |
10% |
5% |
84% |
7% |
9% |
Information like this encourages mental health professionals to treat minor-attracted people unethically. |
81% |
13% |
6% |
76% |
16% |
8% |
I would seek help from a mental health professional who believed information like this. |
8% |
10% |
82% |
7% |
6% |
87% |
Some respondents’ comments about the DSM-IV-TR accompanying text: • “This only serves to strengthen the misunderstanding and hate society at large has for us …” • “What would be the point in seeking out a professional likely to traumatize me with these prejudices?” • “This passage has nothing to do with mental health … It does not assist a mental health provider in providing treatment for a minor attracted person, only in identifying the minor attracted person’s illegal activities with the presumption that they exist.” • “It has little to no focus on pedophiles as human beings.” |
||||||
Some respondents’ comments about Pessimism about Pedophilia: • “It refers to ‘pedophiles’ as if they were some kind of dangerous animal, or a threat by default. It is quite offensive.” • “[I]n short, the focus should be on treating individuals, not punishing criminals.” • “[T]he author clearly sees pedophiles as the enemy.” • “Information like this is intended to dehumanize us.” |
One respondent wrote that the DSM-IV-TR accompanying text expresses a “view that is unable to allow both the therapist and the client to work towards a positive outcome.” If MAPs perceive the DSM as portraying them as so fundamentally different from other people, so incomprehensible, and so dangerous that containment and control are the only possible responses, then it is unlikely they would ever believe that professionals would address their needs and help them develop fulfilling lives that contribute positively to their communities and society.
However, non-forensic research demonstrates that the DSM portrayal of MAPs is not the result of objective research, and that the alienation of MAPs from the mental health system is not inevitable. If the DSM’s purpose is to help clinicians identify and understand the mental health needs of MAPs, it seems prudent for those responsible for the DSM-5 entry on pedophilia to heed the American Psychiatric Association’s exhortations regarding the DSM revision process:
• “[A]ll recommendations should be guided by research evidence” from “diverse perspectives, disciplines, and areas of expertise” (American Psychiatric Association, 2010a and 2011). Non-forensic research free from assumptions and interpretations that are unwarranted or based primarily on forensic data is needed. A narrow focus on sex offenders is inadequate.
• The DSM should clearly “reflect the needs of our patients” (American Psychiatric Association, 2010b) rather than appear to focus on social control. It must take into account the impact of stigma and the life problems MAPs face.
• Patient and family groups should be involved in the revision process (American Psychiatric Association, 2010a). MAPs in the general population and their families have invaluable first-hand knowledge regarding the nature of attraction to children and adolescents, their own feelings and motives, the effects of stigma, their own mental health needs, and the problems they must negotiate living in society.
Revising the DSM in a productive way will require a change in the authors’ perception of MAPs from seeing them solely as offenders or potential offenders to seeing them as humans with needs and motives that are similar to those of other humans. It is B4U-ACT’s experience that this change requires face-to-face meetings.
Unless this happens, many MAPs will likely doubt the DSM’s credibility and perhaps that of the mental health profession and will likely avoid mental health services from clinicians who take the DSM seriously. MAPs will remain in hiding, with no support for living law-abiding lives. Both adolescents and adults will continue to experience depression, engage in self-harming behavior, and seriously contemplate or attempt suicide. This outcome is unsatisfactory for children, for minor-attracted people, and for society.
American Psychiatric Association. (2000). Diagnostic and statistical manual of mental disorders (4th ed., text revision). Washington, DC: Author.
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[1] For the diagnostic criteria and accompanying text in the DSM-IV-TR and the proposed criteria in the DSM-5, see Appendix C.
[2] It may be asserted that this is an effort to depathologize the attraction itself as long as it is not acted upon illegally. However, such an approach would imply that the disorder lies in the lack of self-control rather than the object of attraction, so that the term “pedophilic disorder” would inaccurately identify the nature of the disorder. Furthermore, research has not established that the level of self-control among those diagnosed according to the proposed DSM-5 criteria is lower than that among the general population—nor is there evidence that any such research is proposed.
[3] Findings reported in this paper are preliminary, based on data collected during the first six weeks of an ongoing survey. Results of the full survey will be posted at www.b4uact.org/science/survey/02.htm.
[4] See Appendix C.